Oh yeah I was supposed to be all back and in the mix with y’all but *sighs* life happened…again. So where did we leave off. Oh I was still on Tecfidera. I sat in 97 degree heat over the summer and did pretty well (Although I don’t suggest it. I paid dearly but hey YOLO!! Yeah right I was in bed for a week after. We’ll talk about that later). Sooooo My Tecfidera journey ended with a call from the nurse that said “Don’t take another dose.” Yeah my T-cells went on vacation…or were evicted by Tecfidera. Because I have the greatest neurologist ever (Dr. Guy Buckle) I was monitored properly, removed from Tecfidera and called in to discuss other options. One of those options was Copaxone.
Needles!!! Needles!!! NEEDLES!!
But before we go there let’s rewind and talk about Tecfidera.
Oh it was a wonderful blocker of all things MS. My lover must have found another, I thought. He gave me very few problems. I was at softball games, cheering, being a softball mom and loving every minute of it. I was living it up!! I would forget a dose every now and then, but for the most part my Tecfidera journey was non eventful. I didn’t get any new lesions, I had no relapses and last MRI showed no active lesions so I was loving this. I still had the fatigue of a million years of no rest, but hey you can’t expect a stalker lover to just give all the way up. Wouldn’t be natural. Then my lover Michael EalyED my Morris Chestnut. If you have no idea what I’m talking about you must have missed The Perfect Guy.
Y’all have got to see this movie. I mean it’s not in theaters anymore, but go buy it. Why? Well because the folks in this movie are just beautiful. Oh and it’s pretty good movie too. Anyway, Tecfidera kicked my T-cells arse and well I had to leave him alone. Tecfidera came in and basically turned off my body’s security system. Ole sneaky bastard. So I had to let him go. Good thing is I had a back up generator and my T-cells are fine now. My stalker lover hasn’t found out I am unarmed and hasn’t given me any real issues. But now I am faced with one of my biggest fears…needles. Now in case y’all don’t know, I am terrified of them. The pain is not the issue (I gave birth with no drugs. I can handle pain). The issue is seeing that needle pierce my skin!!
So Copaxone was up next and was chosen as the best course of action at this point. At least that’s what my neurologist was telling me. When he mentioned Copaxone I was like…
But in the end I started Copaxone about 3 weeks ago and my next post will tell you how it’s going. Just know that all hands are on deck for this heah. My husband, children, friends, perfect strangers. Speaking of perfect, let me give y’all a peak at The Perfect Guy . Gwon pick it up. Michael Ealy and Morris Chestnut in the same movie… on the same screen?!!! *Swoons*
Long hiatus huhn? I was being held hostage by my lover. Well not just my lover, but my life with my lover. I think I just got tired of talking about him. It seemed he had just taken over my life in every way. If I wasn’t protecting myself from him, I was talking or writing about him. I’m sure you can all relate. So I took a little bit to just go about my business. Now I was still protecting myself from him, but I wasn’t waking up thinking about what activities he would allow me to do or not to do. You know how it goes. You open your eyes and the first thing you assess is what’s your pain like. Fatigue? New symptoms? Although I still did these things (Because what’s stalking lover if he doesn’t make you think about him constantly) I spent very little time talking about him. Then today I sat in a hospital room with a friend as she received her treatment for Sickle Cell. I realized us sharing our stories with each other gave us strength. The strength to fight another day. I remembered that this is the very reason I started this blog. I wanted to reach out to someone who may be in the battle of their lives and need to know someone out there understood. Oh the time I took off has been full of stuff that I just must share with you. Like how I sat in 97 degree heat cheering for my baby as she made the Allstar team for the first time. How I lost a friend to cancer and it blind sided me so much that I still haven’t recovered. How a woman I went to elementary school with asked me to speak to inspire women and another friend I went to High School with gave me the gift of understanding as she spoke about her journey as a caregiver. Oh my lover has been busy. He didn’t just go away because I stopped talking about him. I did realize that talking about him is exactly what I needed to do. So, here I am. Back at it. I have been released from my “No talking about MS” hiatus. I’m BAAAAAACKKKKK!!!
I haven’t blogged in a while. Mainly because I got tired of talking about MS. You ever get just sick of hearing about it, talking about, being treated for it, just down right sick of it? So I took a sabbatical from MS. Well as much of a sabbatical as one can take. In taking that sabbatical I was watching TV and this beautiful picture popped up.
This is Devon and Leah Still. Leah is battling Neuroblastoma. My last blog post will give you the entire story. Here’s the linkhttps://themsmistress.com/2014/09/21/football-is-full-of-heart/ I saw this beautiful face and the light that is just bursting from her and said I want to do something to help her. I want to help her kick cancer’s arse!! I think I’m so drawn to her because she reminds me so much of my own Leah. Just full of life and they are fearless!!! I also realized I needed to help her and children everywhere who are battling this son of a biscuit disease. My first step. Pray. Pray for this little one. My second step. Recruit. Yep recruit. I am recruiting right now for #TeamLeah We will all be #LeahStrong and do everything we can to stomp out childhood cancers. If these little ones can fight with all they have why can’t we help them? My team so far consists of 7 and 8 year olds who have been busy stomping. Check out their stomping gear.
Third Step. Bone Marrow drive. Why a bone marrow drive? Because the last one I did yielded a match!! I haven’t done one since 2011. Some childhood cancers can be treated with a bone marrow transplant. That is great news, but for some it is slim to none that you find a match. That is unacceptable. I will once again partner up with the Be The Match foundation and together with #TeamLeah we will Stomp out cancer. Wanna join #TeamLeah? Email me at TheMSMistress@gmail.com a picture of your stomping gear and a message for Leah and/or Tweet Devon Still @Dev_Still71. Use hashtag #LeahStrong #TeamLeah Tell me how you plan to help stomp out childhood cancer!! If you decide to donate money please get with a reputable organization such as The American Cancer Society http://www.cancer.org/
I won’t tell you that my dreaded lover is not pursuing me as relentlessly as he ever has. Hey that’s what MS does. Right? But I will tell you that I am giving him less and less attention and well that feels great. Oh I am still on Tecfidera and I seem to be doing well no complaints.
THE MS MISTRESS IS #LEAHSTRONG #TEAMLEAH
The light that shines from this little one!!! I have had her in my prayers and am faithful that she will beat this!! Great job Bengals!!
MS gives you so many reasons to shed a tear. These past couple of weeks it seemed to give me more than my share. But that girl I met in third grade challenged me to optimism. And I will not lose a challenge. Unless you challenge me to set myself on fire or be choked unconscious…yeah there are actually these kinds of challenges and folks more than happy to accept them. I actually watched one where two girls allowed two boys to basically choke them out or assist with them choking themselves out… hell I don’t know what I witnessed, but I watched and thought their parents have to feel
But back to my optimism challenge. (This is why my lover can’t keep me down long. I stray so easily). This week the pain, fatigue, brain fog, medications seemed to overwhelm me. Did I say pain? Maybe it was because our house was full of activity with back to school events and I really felt ill equipped to attack any of it. So as I slowly started to sink into my own private pity party I remembered my challenge. Every time a negative thought entered my mind I came up with a word to change the direction. The word was dolphin. Don’t ask me why dolphin. I have no idea *shrugs* But thinking dolphin did not stop the pain, medications, etc. I needed to physically do something for that. Then I saw this commercial
Yes!!! That is it!! I will what I want. Now that can be taken at least a couple of ways. For me. My will is what will drive me. So what did I do. I danced!! First I just did the chair/bed dance. You know where you are giving it all you got sitting in the bed or chair.
And I don’t know if it was the music or the movement, but my spirits were lifted. The circumstance was the same. I still had all the things I had before I started to flash dance it, but my will, my spirit was saying “Get it girl!!” And the next day I was listening to music and cutting a jig. Every now and again I had to say dolphin because thoughts like “You will pay for this later.” and “You’re gonna fall. Sit down!.” would surface DOLPHIN DOLPHIN. I am living my life in motion!! <<<(Stolen from the woman below)
Misty Copeland thanks for that commercial. It came right on time and for all of you out there…
I HOPE YOU DANCE
“Promise me you’ll give faith a fighting chance…” Can y’all promise me and Lee Ann that? Now
READY. SET. DANCE